Nick Jones

God, Life, Religion

I Hate Neulasta – Chemo Round 2 Update

Neulasta hurts

Do you remember that time when you were going through growth spurts? The pain in your bones that you would feel as you body stretched and grew taller and taller? I had all but forgotten that pain, that is, until now. It’s past midnight as I write this and the bone pain that I feel is excruciating. I figured since I couldn’t sleep, I might as well start this update.

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Round two started with a bang. You saw the picture and read the post (here). I was all fired up, ready to roll on all cylinders. I was planning to meet this cancer head on, kick it in the teeth, take no prisoners, feel no pain, sail through with flying colors. All of my hopes were dashed as I slowly counted the hours and felt that poison take it’s hold on my body. I still have to get through two more rounds of this. I’m in for a real treat if it keeps going like this.

I ended the week feeling pretty crummy. Nausea kept swirling its ugly head this time, and I even lost it once Saturday morning. I feel like I’m being pumped full of enough poison (I am) to kill an elephant. My body screams to be let loose each day as I watch the cisplatin and etoposide (or e-tope as the nurses call it) slowly get pumped into my weakening body. It’s all I can do to not break down and cry uncle.

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And then, the Neulasta. Doc was not completely happy with my white blood count after three shots of Neupogen. It was barely low. Not low enough to hold treatment, but low enough to need to be very careful. So this time around he ordered me to get Neulasta. I think I mentioned it before as an option that we didn’t want to try, but for all of us I’m going to give a little refresher. Neupogen is used to help boost the production of white blood cells. Neulasta does the same thing, except it’s like getting five to seven Neupogen shots at once.

A common side effect of Neupogen is bone pain. I didn’t have much of that when getting those three shots. In fact, it wasn’t that bad at all. So I figured that with Neulasta it wouldn’t be much different. Am I ever wrong! My bones haven’t felt this bad since the growing pains I felt when I was a kid. And even then, it feels worse! I only hope that this stuff will work this time and my white blood count will be up to where it needs to be.

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There has been a constant stream of mail on my door since the return of my cancer. People have been sending me cards, notes, encouraging words, and the like. It has been a major boost mentally to have those cards coming. Just to know that people are thinking and praying for me helps both me and my family cope with the changes that have been happening to me.

I’m over the halfway mark now. It’s all downhill from here. I just need to get through two more treatments and then as my doctor says, “We’re almost completely sure you’ll be cured after this.” With the success rates the way they are, I don’t have any reason to doubt. Now if I could just get rid of this bone pain.

6 Comments

  1. still praying man!

  2. Hang in there. We are praying for you.

  3. Dan and Mary McCulloch

    August 12, 2014 at 7:34 pm

    This too shall pass but in the meantime it must feel like an eternity. God will continue to give you strength. We are praying for you.

  4. Love those first three sentences of your last paragraph. Prayers continue for you here in California.

  5. No mercy on this cancer, brother! You will come through. Lifting you up daily.

  6. ALMA & MEL JOHNSON

    August 15, 2014 at 11:11 am

    HEARTFELT pleadings to God for you at this time. Go’s promises are true. HE WILL BE WITH YOU . HE LOVES YOU SO VERY MUCH. IN HIS TIME HE MAKES ALL THINGS BEAUTIFUL IN HIS TIME.

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