Nick Jones

God, Life, Religion

Chemo Coma

chemo coma

I don’t know if this is a thing because I really haven’t done a lot of research on it, but I felt like I was pretty much in a coma all weekend.

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One week of chemo down. Now for a two week break before the second week of chemo begins. This stuff really kicks my butt. Going to the infusion room every day for a week is really tough, especially since I’m there for five and half to six hours a day! I am very happy for the respite.

Unfortunately there was a side effect I was not anticipating which happened to me this weekend. I’ve never been in a coma before, but I think I have a better understanding as to what it is like after this weekend. I’m going to call it chemo coma (or maybe chemo brain). I slept pretty much all of Saturday away. I would sleep for several hours, then get up for about 45 minutes, then sleep for several more hours. I would be awake enough to eat a little something to keep the nausea at bay (yes, starting to deal a little with that), and then I would fall right back to sleep. For someone as active as I enjoy being, this was torture.

Thankfully my parents had taken my son out for the day (they went to the coast) so I didn’t feel as if I had to stay awake to interact with him. But still! Sleeping all day! The one benefit to the whole thing was that the majority of the nausea was abated because I was asleep.

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Sunday was completely different. I couldn’t sleep at all. Which was great at first. I was able to go on a short walk (roughly half a mile) and I was able to interact and converse with my family. My doctor has told me that light exercise (I have trouble defining light) is and will be good for me during chemo. So I was so excited yesterday morning when I felt good enough, or at least stubborn enough, to go out and walk. I walked around our block and I was done. It’s amazing how quickly stamina is gone while on chemo.

Shortly after the walk however, the headaches started. At that point, all I wished for was to be able to go back to sleep and sleep off the headaches. But I couldn’t. No matter how hard I tried, sleep would not come. Finally at about 3 in the afternoon I was able to sleep and free myself from the pain.

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Now a new week is starting. The doctor has recommended that I receive Neupogen shots. Basically Neupogen is a kick start to my bone marrow. Since the chemo is killing everything in my blood stream, and I need to have a certain level of red blood cells, white blood cells, and platelets when I start my next round, the Neupogen turbo charges the creation of these blood cells (More in depth info here).

The side effects that I get to look forward to (because everything is about side effects these days) is soreness in my bones. I’m actually not really looking forward to that. But I am buoyed by the support and prayers that many of you have been giving me. It has been really amazing to see the response to my situation and the care and concern for me and my family, even from total strangers.

I had an acquaintance watch the video that the Oregon Conference Pastors put together on my behalf (click here if you haven’t seen it yet) and they said, “This is why people need a church family.” There is an amazing amount of caring that goes on in a church family, that can be difficult to find outside of one. I know that stories differ, and I know that many have a completely opposite experience. But I have seen an amazing side to my church family through this. I can only thank God for this amazing family and this amazing support.


  1. Whoa. Sounds ROUGH, Nick! I’m so glad that you have such a great family and such a great church family to support you through this. And God is always with you!

  2. Oh! And your post reminded me of these encouraging words to those suffering in pain —

  3. “Often your mind may be clouded because of pain. Then do not try to think. You know that Jesus loves you. He understands your weakness. You may do His will simply by resting in His arms.”

    Ellen White, writing to those suffering in sickness. The Ministry of Healing, p251.

  4. God Bless you and your family were all praying for you

  5. Always praying for you Nick!!

  6. Peggy Sue Sergio

    July 21, 2014 at 5:58 pm

    We are praying for you and thinking of you often. Stay strong. You are a great testimony of God’s love. The youth group had special prayer for you and will continue to do so.

  7. Hang in there my brother in Christ! May God be your stronghold this week. I sent you a link of my music ministry website–there are some piano tracks on there for you to enjoy and relax to. Always praying for you.

    Jered Kostenko

  8. Pastor Nick,
    All of us here in the Oregon Conference are keeping you, your wife and your child in our prayers. I personally have shaved my head as a way of bonding and not forgetting what your family is going through. My wife is a breast cancer survivor. I know the fear and joy that event caused. Mrs. Jones will need as much support if not more during this time. Every day I shave my head I am reminded of what you and your family endure. If there is anything you need…Just ask.

    Randy Cummings – Director: Information Technology, Teacher, Parent, Husband

  9. Sylvia Demaline

    July 22, 2014 at 9:06 am

    Praying for you and your family.

  10. Susan Robertson

    July 22, 2014 at 9:48 am

    One day at a time, sweet Jesus, that’s all we’re asking of you… . Know that your spirit of faith and courage is inspiring! Thank you Nick!

  11. Ginger Ketting-Weller

    July 23, 2014 at 10:16 am

    Just read about your fight at the WWU Facebook page, Nick, and wanted to let you know we’ll be praying for you down here in California. I am touched by the show of support you’ve gotten from the pastors in your conference; it does indeed speak clearly of what our church family is, at its best.

  12. Kathleen Frasier

    July 24, 2014 at 9:24 pm

    Praying for you Nick and Julie.

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